Posts

Update on final cleanup

I've not been particularly diligent at using treatments these past few months. Apart from the occasional use of Tea Tree Oil, I haven't really been using anything. That being said, I am still noticing extremely but steady improvement on my glans. the place where I still have the worst covering of white BXO skin is on the base of the glans, where urine naturally gravitates toward after dribbling. This was probably the thickest covering all along. Measuring the progress of this late recovery is challenging. To measure how much white skin I have requires a reasonable amount of blood flow to my glans. Without that, there's little contrast between the different areas. But Tea Tree Oil tends to promote blood flow anyway, so it gives the impression that progress is happening faster than it perhaps is. I am trying to not to fixate over progress too much, and just focus on the basics - after urination, dry, dry, then dry some more. Even then, I will occasionally check to make su...

BXO Healing Guide

After considerable time contemplating how I could best serve the world of BXO sufferers, I am pleased to finally bring you the BXO Recovery Plan . The plan is a step-by-step process detailing each of the stages in the healing process and what you should do along the way. Initially I contemplated making an eBook, but in the end I decided against this for several reasons. First, I'm not qualified in functional or natural medicine, and I didn't feel write publishing a book giving advice about this. Second, I don't want to reveal my identity. I don't know how feasible this is when publishing a resource and collecting income from it. But what finally helped me make my decision was this: You have all suffered and paid enough already. I know what it's like when you have BXO and you want it gone. You'd do almost anything to get rid of it. This often means spending money on yet another miracle cure. I didn't want to be 'yet another miracle cure'. The gu...

Another Blog Update

Well it's been a whirlwind couple of weeks, but I'm pleased at the response I've had here in terms of visitors, and ad revenue. I had to edit the 'Update on this blog' post as it was technically a violation of the AdSense terms of service. I've been reflecting on this blog and what some of you have said to me, both in comments and in private email exchanges. I've come to a few conclusions. When I set the blog up, it was for me personally to document my progress. I also wanted to share my journey with the world, in the hope that I could help other men in my situation. The web seemed to be devoid of much in the way of structured content around how to treat BXO. I wanted to fill that void with this blog. Several years later, the fact that the blog continues to gain more visitors every month is proof that the demand is there. But for me, a blog has never really felt like the correct format for this. A blog is something that someone who pursues a hobby wi...

Tea Tree Oil

I'm using my current surge of enthusiasm to rediscover some treatments I haven't used for a while. I've now added Tea Tree Oil to my treatment regime, albeit with a slight twist on last time. Previously, I applied it neat (undiluted). After a while, I could no longer tolerate it. This time, I've been diluting it in some moisturiser. It still creates sensation shortly after application, but rather than being a 'burning' it's almost more of a 'cooling' (peppermint) sensation. It's actually quite nice. I've been applying Tea Tree Oil overnight, and Creme Complete during the day. At the end of each day, most of the Creme Complete will have been absorbed or rubbed off, but I generally get a notable peel. As my skin dries out, I'm able to see fine peeling at the edges of the BXO skin. I know I've said before that I don't know whether treatments are any more effective than just keeping the skin dry, but I'm now beginning to thi...

Comfrey

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Comfrey is a plant as pictured below. It's a medicinal herb that is used for all sorts of things from healing wounds to broken bones. I've never understood the latter, but I often see it written in natural health circles. I'm also told the plant is sometimes referred to as 'knitbone'. Some people use Comfrey internally, while others believe it to be toxic. I don't drink Comfrey tea, but I do make a highly concentrated Comfrey tea and use it on wounds. Because of the controversy around it, it's not available in natural health products in some countries, even for topical use. This makes it hard for some BXO sufferers to even experiment with it to see if it helps them. My hope, by showing you what it looks like, is that you may be able to spot it growing in the wild. Comfrey is a rampant plant with a deep-growing tap root, so once it's planted it can be difficult to control. This means that there's a fair chance you can find it growing in t...

Update on this blog

You may have noticed that the look and feel of this blog has changed. You've probably also noticed that I'm making more frequent posts at the moment. As the saying goes, necessity is the mother of invention. And while I'm actively working to clear the final patches of BXO and strive for an even more healthy and normal looking penis, I'm posting a lot here. In addition, I've been pondering for a long time how I could utilise some of my skills and talents (outside of work) in a way that helps others, but also brings some value back to me. Looking at the amount of traffic this blog sees these days, I'm beginning to think I may have accidentally discovered that very outlet. Perhaps it wasn't that I became victim to BXO, perhaps it was BXO that found me? Maybe there was a purpose for it after all. What began as a blog where I documented my journey has turned into what some are telling me is one of the best resources out there online in helping men deal with t...

Revisiting yet another old friend

Even though some readers on here probabl consider me to be a leading authority in the natural treatment of BXO these days, even I forget what I've done sometimes. Recently, I was reading through my old posts and reminded myself of a treatment that I found effective but I've since stopped - Comfrey. Re-reading through what I used to say about it, it was great at creating some aggressive peeling. Why not give it a try again? I have a stash of some dried Comfrey leaves, from a wild plant that grows close to where I live. Yesterday I decided to make up a batch of ultra-strong Comfrey tea, which I can then apply to my skin. I heated some water up to just below boiling, crushed the leaves, then threw them into the water and left them soaking for a few hours. Eventually, I filtered the leaves out, then heated it over a low heat until the water had entirely evaporated. I then added a small amount of water back and froze the mixture into tiny cubes. Last night, I applied a couple ...

One month into the final cleanup

I thought it was probably time for an update, given today marks exactly one month since I announced I was restarting my healing for a final cleanup of the BXO skin on the underside of my penis. I've been using a combination of talcum powder, Creme Complete, and just ultra paranoid drying after urination. Talcum powder is my favourite treatment, for several reasons. First, because it dries the skin out. Secondly, it helps identify peeling. The edges of the peeling seem to show up much more clearly when you apply a layer of white powder. It's nice to be able to confirm that your efforts are actually working. The third benefit to using talcum powder is that it gives you a gauge of how dry you are keeping yourself. It starts off white, but if you get any urine on your glans or any other part of the skin, you will quickly see the white washes off. It's a good target to keep the whole thing white, and also gives you a good alarm that it has become dry, and you need to work t...

Final cleanup - one week update

My latest project, to remove the last remnants of BXO skin, is progressing nicely. I've been using a combination of treatments, more as an experiment rather than because of what's best. I have been using talcum powder throughout, with the exception of the three times this week I have applied Creme Complete. Recall that last time I used that, it caused an itching reaction, and I could no longer tolerate it. I thought it was time I tried again. I'm pleased I did, as I now appear to tolerate it just fine. Rather than rely solely on Creme Complete, I've been using it every couple of days, in the hope that perhaps it gives me a 'boost'. Other than that, it's been talcum powder, using toilet paper after urination, and squeezing over and over when I've finished. I have noticed a lot of dribbling after I've finished (not a lot as in volume, but a lot as in it takes a long time before I stop seeing urine). This is why I'm also doing pelvic floor exerc...

Stop Press: I'm not full clear of BXO just yet

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It might come as a surprise to many of you, but after many years of recovering from BXO, I'm not healed yet. I've often talked about how the underside of my head is one of the last areas to clear, and this week I decided to get serious about healing the remains of it. Here's a picture I took a few nights ago showing what I mean. If you look toward the bottom of the head, you'll see the skin colour lightens considerably. It feels different to the touch as well. It's not 'scarring' from BXO (I'm still not convinced that such a thing exists)... it's BXO itself. As I've said a lot on here, my BXO developed around about the time I started dribbling after urination. When I pay very close attention to my flow these days, even though I use toilet paper as a rule after urination every time, I still find I sometimes dribble slightly after I'm done dabbing myself. Previously, I had been thinking that a couple of pats with toilet paper would be eno...

"Compelling evidence" that BXO is caused by urine

As those who have read a few of my posts will know, I'm a firm believer that BXO/LS is caused by urine. I've already cited a couple of medical studies or articles supporting this theory, and today I found another. In the Journal of of the American Academy of Dermatology (Volume 66, Issue 4, Supplement 1, April 2012) there is a short article by Tang Ngee Shim and Christopher Bunker, of the Department of Dermatology, London suggesting "compelling evidence that male genital lichen sclerosus (MGLSc) is caused by exposure to urine". Rather than select pieces of it, I will just reproduce the entire article: "There is compelling evidence that male genital lichen sclerosus (MGLSc) is caused by exposure to urine. MGLSc is an acquired cutaneous disease of uncertain etiology that results in sexual dysfunction and urologic morbidity and carries a risk of squamous cell carcinoma (SCC) of the penis (2-12.5%). Amongst prior postulated pathogenic factors in GLSc are human ...

What do you all think about an eBook?

I'm still here, and as those who comment will know, I still come here quite often. I love reading all your comments and chiming in with my two cents where I can. It's occurred to me that a lot of people that come here see me as a bit of an authority on this subject. I'm a recovered BXO sufferer, who has overcome this disease mostly on his own, and using over-the-counter products and habit changes. The natural treatment of BXO is something that potentially belongs in an eBook of some kind. I realise that it's quite a rare disease in men so this ebook wouldn't exactly become a #1 best seller. However, this blog has a few flaws. First, there are a LOT of pages. It would take someone a very long time to sift through them all. And the context of where they are at in the recovery may not be the same as the point I was at in the post they read. Secondly, like a scientist (I'm not actually a scientist) I spent my time proving myself wrong when writing this blog....

The link between mind and body

I've been watching a lot of interesting content around health and wellness lately. And there are some very interesting viewpoints out there indeed. Dr Lissa Rankin has a TED talk around the notion that we can literally think ourselves sick. Jini Patel-Thompson gives a talk about how the body is literally the subconscious, and how we see subconscious issues manifesting as physical symptoms. Dr Bruce Lipton talks about the topic of Epi-Genetics, and how the environment in which our cells live is the most important factor in determining how they live and reproduce, rather than DNA in the nucleus. In my previous post, I asked the question of how many people noticed a correlation between their BXO and a compromised emotional state. To date, nobody has answered it. I have since asked the question in some other parts of the Internet, as I'm really interested to explore this idea. The point that all three speakers have raised is that our biological health is a direct consequence ...

Update - September 2018

Wow, has it really been 10 months since my last update!?! I thought I'd give an update on where things are currently at for me, with regard to my whole health. This isn't just about BXO/LS. It's about my entire health. Perhaps some of this will resonate with you. BXO is referred to as an autoimmune disease. This is a term used to describe conditions whereby the body mistakes its own tissue as foreign, and begins to attack it. Multiple Sclerosus. Hashimoto's thyroiditis, Lupus, Rheumatoid Arthritis, Inflammatory Bowel Disease and Graves disease are all examples of autoimmune conditions. There are others also. Another term for an autoimmune disease is a 'we don't know' disease. Western medicine cannot determine the origins of autoimmune diseases. It can do a pretty good job of treating the symptoms in many cases, but comes up short when identifying the underlying cause. This is one reason why BXO has proven so fascinating for me. Not only was it a dise...

Medicine is starting to agree with me

For many years, I have stated that BXO is caused by dampness. I started showing BXO after I began dribbling slightly after urination, and my symptoms improved under opposite conditions. While I employed a range of treatments, I also experienced a steady improvement in symptoms using nothing other than dryness. I was browsing forums recently, and I came across a paper published in 2015, which stated that Male Genital Lichen Sclerosus (MGLSc) was most likely not autoimmune in nature, but instead, symptomatic of exposure to urine. You may read the whole paper if you wish, but essentially the conclusion sums it up nicely: MGLSc is an acquired, chronic, inflammatory and fibrosing cutaneous disease responsible for significant sexual and urological dysfunction as well as creating a risk of squamous carcinoma of the penis. The etiology of MGLSc is now much better understood. It is not primarily an autoimmune condition. It is likely that an interaction between the irritant effects of uri...

As good as it gets (with pics)

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I thought it was time I did an update with pictures. This is more or less what I have been looking like now for some time now. I think it's safe to say that what I have now is as good as it's going to get. Considering what I looked like when I started, I don't think it's bad going. Here's a list of all the issues I no longer have: Fully normal sexual function, without risk of injury Skin feels normal and supple to the touch, and has regained sensitivity Skin looks normal by and large, particularly on top No partner has ever commented that anything looks abnormal I feel 'normal' again But of course, it's not perfect. I've had to accept a few slight issues: A very small amount of itching sometimes occurs after sexual activity There are still some small areas of white skin I have to maintain dryness. I don't know this for a fact, but due to the slow progression of this disease, it's not something that is conducive to experimentat...

Creme Complete Again

After developing an apparent sensitivity to Perrin Creme Complete, I decided I would once again try my luck with it. A couple of weeks back, I tried applying a relatively small amount to my glans only. I only applied it once. Sure enough, within about a day, my surrounding skin was itching. It seems to be more of a problem on the inner foreskin than anywhere else, but the fact I was feeling the itching on an area I didn't even apply the creme suggested my sensitivity was here to stay. I was just about to declare myself no longer tolerant of Creme Complete, when I discovered an almighty peel happening. Just as it had done in the past, the Creme Complete created not just an itching sensation, but later, peeling. This is a more predictable treatment than Comfrey, which seems to be 50/50, and very much dependent on how recently I have last peeled as to whether it will happen again. I decided I would try it in VERY MINUTE amounts. So minute, in fact, that you almost can't see ...

Comfrey with a Twist

I've been experimenting a bit lately, and thought I'd share the results on here. As you know, I'm a big fan of using Comfrey for treatment of BXO, as I think it's a great healer and does a good job of promoting peeling. The way I use it is to dry the leaves, break them, then make a very strong infusion in boiling water. It's just like making tea, only I then boil off a considerable amount of the liquid, leaving mostly concentrated extract. I then freeze this extract so it doesn't spoil, and can be applied easily by rubbing ice onto my fingers, then applying the liquid to the BXO areas. But there's a problem. While it coats the skin, it also rubs off in the places where the foreskin doesn't cover the glans, because it is in contact with my underwear. So I've noticed my BXO is healing a lot more on the areas closer to my body. I came up with a twist on the application of Comfrey, and have been observing how it develops. I apply the Comfrey extract...

The meaning of this blog

Regular visitors to this blog will have noticed that my post frequency has substantially reduced. This isn't because I don't care, but because I don't really have anything new to talk about. There's only so many times I can say "I'm still improving using the treatments I've been discussing over the past few years" before realising I've said what I need to. I would still like to share posts about others who have made groundbreaking discoveries about how to treat BXO, but they just don't seem to exist. That leaves me. Little old me... to serve what feels like the entire world's population of BXO-suffering men, with what is apparently the only regularly updated natural BXO treatment resource on the web today. The web is full of pages discussing various herbs, or pages talking about Lichen Sclerosus and which herbs may be beneficial, but there's no accountability there. There's no "here's how to use this herb, here's what...

Alternating Treatments

Many of the treatments I've tried, discussed here, or read about online will cause a reaction from the body. Usually, this comes in the form of peeling, but some treatments will cause inflammation, then peeling when treatment is stopped. But as you probably know from wound healing after sunburn or cuts, peeling only happens once, or a handful of times, before the wound moves to the next phase. I wonder whether the same is what's at play when it comes to BXO? When I began treating myself, I would often see peeling. I would get excited about it, and expect for it to continue indefinitely. Then when it stopped, I would get disappointed and think that I was stuck with this condition for life. Anyone who has dealt with treatment for BXO knows why I would have thought like this - it's crazily slow to treat, and for someone who felt like the first person in the world to even dream of doing anything other than treating the symptoms, I had no material to read to suggest otherwise....