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For something completely different

As you should all know by now, I'm stubborn and refuse to accept status quo when it comes to healing. For me, status quo is the place where I am healing, but incredibly slowly. Functionally speaking, I'm fully healed, but I still have white patches, which are healing but too slow for my liking. It's been a while since I tried a new treatment, so rather than doing the same thing and expecting a different result, I decided I'd try something else. I have coconut oil in my pantry already, so trialing it costs me nothing. I'm now using it every day. I figured it was worth trying something oily because it takes more to remove from the skin than Comfrey tea, and because I noticed something interesting of late - the part of my glans that seems to be healing faster is actually the part that is always covered in foreskin. I'm assuming this is the Comfrey at work here. Keeping the skin in contact with the healing compound all the time helps it heal, while having the skin...

An update on this blog

I wanted to give you all an update on the future of this blog. As you know, I set it up primarily as a diary of my own recovery journey. I did so in the hope that others might benefit from my experience, and wanted to create a resource that I myself wish had been around when I was at my lowest due to BXO. Those days are mostly behind me, and although I'm still far from the stage I'd like to be at, I'm much much less concerned about my BXO than I was when I set this blog up. So, you would tend to think that my motivation for posting here would be waning. But it's not, and here's why: This week, we reached 10,000 all-time views We are approaching 1000 views per month We have a total of 79 comments (including my own) Now, some of those views will have come from search engines, but as anyone hoping to launch a new blog or website knows, getting hit by search engines is a sure sign you are doing something right, because it means you will show up in response to pe...

The emotional side of BXO

Any kind of ailment on or around our genitalia affects us deeply. There is such a stigma placed around STDs that, even when confronted by something that is not infectious, we still end up denigrating ourselves in much the same way as we would if we did have one. It's not just the connotations of being 'unhealthy' that get us down, it's also just the mere visual imperfections. It's bad enough having acne on your face, let alone an unattractive imperfection on our genitals. There's another side to BXO as well - the loss of physical function. In my case, my skin was so tightened and inflexible from it that most kinds of sexual activity were out of the question. I know this can be particularly problematic for women with Lichen Sclerosus, as they can experience very serious issues affecting their sexual capabilities. So here's BXO, which while not contagious, looks hideous and impacts on what we can do, sexually. To top it all off, the medical profession don...

Does BXO originate from skin damage?

This morning I was pondering the question "So where does BXO come from?". We're told it's an autoimmune disease, perhaps genetic, and basically that's it. I'm not an immunologist, nor will I ever be. But I don't understand how someone can have an autoimmune disease that stops being active just because it is kept dry. I've read it countless times - keeping the area dry seems to help. I've asked on forums who finds that dryness helps their BXO heal, and the answers are never "not me". Plenty say yes. So why is an autoimmune disease only an autoimmune disease if the area is wet? Forgive my ignorance, but that feels like a bit of a weak argument, but I'll reserve judgment. Maybe there's a rational explanation. Another school of thought I've found in several places is that LS/BXO plaques sometimes occur around previously damaged skin. As I have pointed out earlier on, I was circumcised as an infant, and have since restored my fo...

Happy New Year - with pictures

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It's been almost a month since my last post, and I figured it was about time I put some pictures up here. I've been on and off with Creme Complete, but decided instead I'd switch to something a bit more soothing. Creme Complete is a superb product, don't get me wrong. But it doesn't seem to agree with me under certain conditions (when I'm overly tired, run down, or stressed, for instance). I decided rather than deal with itching on affected BXO areas, I'd make the transition to Comfrey. After all, it's summer here, so the nearby plant I found a year ago should be up again now anyway. I will do a separate post on how I use Comfrey at a later stage, but for now, here's some photos of how I'm looking today. Note the small amount of white skin just above my thumb in this picture. The inner foreskin used to be almost pure white. Today, it's almost the same colour as the skin on my fingers again. The area showing the most apparent...

8000 pageviews and counting

I'm up to over 8000 pageviews. That's a really good thing, as it shows I'm having the impact I wanted to - reaching out to people suffering from BXO, and perhaps helping them along the way. I've had a couple of requests for offline contact recently. I'm definitely keen on that, provided, of course, it doesn't become obsessive. At the end of the day, I'm just a guy. I blog about BXO all the time, but my life doesn't revolve around it. In my last post, I said I was going to try a further month on Creme Complete, then perhaps switch to Perrin's Blend, if the CC didn't speed things up. Over that time, I seem to have developed a bit of eczema around my groin in a few patches, and itching is not uncommon with that. There were a few spots around my BXO that were getting equally inflamed, so I decided to lay off the Creme Complete. I also decided it was probably not smart to try the Perrin's Blend under those circumstances, but no big deal; I'm...

Creme Complete - One Month Update

It's been a month since I started using Creme Complete regularly. All I can say is, I am impressed. The first week saw the biggest peel I've seen in a long time, and on the glans at that. I've always said the inner skin peels slower than the shaft skin, and the glans peels slower than the foreskin. So to see peeling on the glans was very refreshing. I haven't been able to reproduce the rate of peeling I got that first time since then, so in reality it was probably the Creme Complete encouraging a large amount of dead skin to peel. But I have been seeing slow but steady amounts of peeling from it over the past month. To observe it properly, you really do have to clean it thoroughly then let it dry out completely, but when you do that you can indeed see peeling. I haven't been too over the top with my applications this time around. Just twice a day, once in the morning after my shower, once at night before going to bed. I think that's why I've...