Posts

Update - September 2018

Wow, has it really been 10 months since my last update!?! I thought I'd give an update on where things are currently at for me, with regard to my whole health. This isn't just about BXO/LS. It's about my entire health. Perhaps some of this will resonate with you. BXO is referred to as an autoimmune disease. This is a term used to describe conditions whereby the body mistakes its own tissue as foreign, and begins to attack it. Multiple Sclerosus. Hashimoto's thyroiditis, Lupus, Rheumatoid Arthritis, Inflammatory Bowel Disease and Graves disease are all examples of autoimmune conditions. There are others also. Another term for an autoimmune disease is a 'we don't know' disease. Western medicine cannot determine the origins of autoimmune diseases. It can do a pretty good job of treating the symptoms in many cases, but comes up short when identifying the underlying cause. This is one reason why BXO has proven so fascinating for me. Not only was it a dise...

Medicine is starting to agree with me

For many years, I have stated that BXO is caused by dampness. I started showing BXO after I began dribbling slightly after urination, and my symptoms improved under opposite conditions. While I employed a range of treatments, I also experienced a steady improvement in symptoms using nothing other than dryness. I was browsing forums recently, and I came across a paper published in 2015, which stated that Male Genital Lichen Sclerosus (MGLSc) was most likely not autoimmune in nature, but instead, symptomatic of exposure to urine. You may read the whole paper if you wish, but essentially the conclusion sums it up nicely: MGLSc is an acquired, chronic, inflammatory and fibrosing cutaneous disease responsible for significant sexual and urological dysfunction as well as creating a risk of squamous carcinoma of the penis. The etiology of MGLSc is now much better understood. It is not primarily an autoimmune condition. It is likely that an interaction between the irritant effects of uri...

As good as it gets (with pics)

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I thought it was time I did an update with pictures. This is more or less what I have been looking like now for some time now. I think it's safe to say that what I have now is as good as it's going to get. Considering what I looked like when I started, I don't think it's bad going. Here's a list of all the issues I no longer have: Fully normal sexual function, without risk of injury Skin feels normal and supple to the touch, and has regained sensitivity Skin looks normal by and large, particularly on top No partner has ever commented that anything looks abnormal I feel 'normal' again But of course, it's not perfect. I've had to accept a few slight issues: A very small amount of itching sometimes occurs after sexual activity There are still some small areas of white skin I have to maintain dryness. I don't know this for a fact, but due to the slow progression of this disease, it's not something that is conducive to experimentat...

Creme Complete Again

After developing an apparent sensitivity to Perrin Creme Complete, I decided I would once again try my luck with it. A couple of weeks back, I tried applying a relatively small amount to my glans only. I only applied it once. Sure enough, within about a day, my surrounding skin was itching. It seems to be more of a problem on the inner foreskin than anywhere else, but the fact I was feeling the itching on an area I didn't even apply the creme suggested my sensitivity was here to stay. I was just about to declare myself no longer tolerant of Creme Complete, when I discovered an almighty peel happening. Just as it had done in the past, the Creme Complete created not just an itching sensation, but later, peeling. This is a more predictable treatment than Comfrey, which seems to be 50/50, and very much dependent on how recently I have last peeled as to whether it will happen again. I decided I would try it in VERY MINUTE amounts. So minute, in fact, that you almost can't see ...

Comfrey with a Twist

I've been experimenting a bit lately, and thought I'd share the results on here. As you know, I'm a big fan of using Comfrey for treatment of BXO, as I think it's a great healer and does a good job of promoting peeling. The way I use it is to dry the leaves, break them, then make a very strong infusion in boiling water. It's just like making tea, only I then boil off a considerable amount of the liquid, leaving mostly concentrated extract. I then freeze this extract so it doesn't spoil, and can be applied easily by rubbing ice onto my fingers, then applying the liquid to the BXO areas. But there's a problem. While it coats the skin, it also rubs off in the places where the foreskin doesn't cover the glans, because it is in contact with my underwear. So I've noticed my BXO is healing a lot more on the areas closer to my body. I came up with a twist on the application of Comfrey, and have been observing how it develops. I apply the Comfrey extract...

The meaning of this blog

Regular visitors to this blog will have noticed that my post frequency has substantially reduced. This isn't because I don't care, but because I don't really have anything new to talk about. There's only so many times I can say "I'm still improving using the treatments I've been discussing over the past few years" before realising I've said what I need to. I would still like to share posts about others who have made groundbreaking discoveries about how to treat BXO, but they just don't seem to exist. That leaves me. Little old me... to serve what feels like the entire world's population of BXO-suffering men, with what is apparently the only regularly updated natural BXO treatment resource on the web today. The web is full of pages discussing various herbs, or pages talking about Lichen Sclerosus and which herbs may be beneficial, but there's no accountability there. There's no "here's how to use this herb, here's what...

Alternating Treatments

Many of the treatments I've tried, discussed here, or read about online will cause a reaction from the body. Usually, this comes in the form of peeling, but some treatments will cause inflammation, then peeling when treatment is stopped. But as you probably know from wound healing after sunburn or cuts, peeling only happens once, or a handful of times, before the wound moves to the next phase. I wonder whether the same is what's at play when it comes to BXO? When I began treating myself, I would often see peeling. I would get excited about it, and expect for it to continue indefinitely. Then when it stopped, I would get disappointed and think that I was stuck with this condition for life. Anyone who has dealt with treatment for BXO knows why I would have thought like this - it's crazily slow to treat, and for someone who felt like the first person in the world to even dream of doing anything other than treating the symptoms, I had no material to read to suggest otherwise....